A Thousand Tiny Steps Podcast

Episode 137: Life with Epilepsy with Jane and Skylar

Show Notes

Jane and Skylar come on this week to talk about their journeys with epilepsy. From being discriminated at work to trying to find supportive relationships it’s been a rollercoaster for them both. In this episode, we go on their journeys of being diagnosed, how that impacts their lives, and what they want people to know. 

 

Key Takeaways: 

 

[1:38] How Jane found out she had epilepsy, getting diagnosed, and type of seizures 

[6:58] Skylar’s first seizure and her type of epilepsy 

[11:34] Skylar’s seizure the night of prom and before graduation 

[14:45] Being discriminated at work and not believed 

[17:00] Wanting to feel like a normal adult who can have fun 

[19:04] Trying medication that changed my mood drastically 

[21:34] Skylar’s experience trying multiple medication cocktails 

[27:30] Being bullied due to epilepsy 

[29:12] Not being able to drive 

[30:06] Having supportive families makes all the difference 

[31:09] Having non supportive partners 

[32:41] What we want people without epilepsy to know 

Resources:

 

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