A THOUSAND TINY STEPS

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Episode 137: Life with Epilepsy with Jane and Skylar

A Thousand Tiny Steps
A Thousand Tiny Steps
Episode 137: Life with Epilepsy with Jane and Skylar
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Show Notes

Jane and Skylar come on this week to talk about their journeys with epilepsy. From being discriminated at work to trying to find supportive relationships it’s been a rollercoaster for them both. In this episode, we go on their journeys of being diagnosed, how that impacts their lives, and what they want people to know. 

 

Key Takeaways: 

 

[1:38] How Jane found out she had epilepsy, getting diagnosed, and type of seizures 

[6:58] Skylar’s first seizure and her type of epilepsy 

[11:34] Skylar’s seizure the night of prom and before graduation 

[14:45] Being discriminated at work and not believed 

[17:00] Wanting to feel like a normal adult who can have fun 

[19:04] Trying medication that changed my mood drastically 

[21:34] Skylar’s experience trying multiple medication cocktails 

[27:30] Being bullied due to epilepsy 

[29:12] Not being able to drive 

[30:06] Having supportive families makes all the difference 

[31:09] Having non supportive partners 

[32:41] What we want people without epilepsy to know 

Resources:

 

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